We would like to start off by thanking everyone that was involved in getting our kids to Salt Lake for the weekend. It was so good to see them and they made for a great distraction. We are so grateful for the gift!!! It was hard to say goodbye……back to reality.
Dr. Belforte came in this morning with the ultrasound machine. It is nice to have the daily stress test where we get to hear the hearts beating, but the ultrasound always paints the real picture. Please bear with me as I try to explain everything that is going on. It is very confusing and the outcome is still very uncertain.
This morning we found out why Stacy’s blood count was low. As a result of the surgery Stacy has a slight rupture and is losing a little blood. They might need to do another transfusion in a couple days to give her a “top off” as Dr. Belforte says. She is in no immediate danger. Just something we need to keep an eye on. She continues to feel more vibrant, unfortunately this has little to do with what is going on with the twins.
Ellen and Elizabeth both have good working hearts but that is only a portion of what the doctors are looking at; a significant portion, but not the whole story. Right now Elizabeth (the donor) is in the best shape even though her bladder is not functioning and there is still no measurable fluid around her. She is only slightly anemic. Ellen (recipient) is the biggest concern at this point. It is basically an issue of pressure and all of the work she is doing because of the ttts and having to manage the increased blood flow. The good news is that she is not showing signs of heart failure. This continues to buy us time. It is a tough situation because Ellen will continue to struggle until Elizabeth’s bladder starts to work which will then create the amniotic fluid that she needs for lung development. Basically, we are not out of the woods and probably never will be. Just sitting around and tallying the days until something happens that requires the doctors to deliver and have the girls take their shot in the real world.
With all that being said, you can see that we are still desperate for your prayers. The life of our twins is very much in the hands of God and only He knows the outcome. We must continue to be patient and HOPEFUL.
We sure miss all our friends and our ‘normal’ days. We have learned just how precious life is and how we must value each day we spend amoung our loved ones. Please take that lesson from our experience. We all get caught up in the schedules and chaos…..please take some time to hug your kids and appreciate all your blessings…….again, LIFE IS PRECIOUS!
With love and grattitude- Bo and Stacy