We are sorry for the lapse in news. After the kids and the grandparents left, it was time to take care of a little business. We also lost our hospital computer and internet service. In the last couple of days we got Stacy set up at the Ronald McDonald House. This will be home base for the Salt Lake Goveas. Before a week ago, our extent of knowledge on the Ronald McDonald House was the collection box at every drive thru in town. Threw our change in there but never thought what it might be. Well now we know what an awesome charity this is. There is a house close to the university and then another annex down the street. Its a cross between dorm living and a bed and breakfast. We have our own room and bathroom and share a kitchen and living quarters with other families. They have laundry facilitites and provide all your food! Every night a group comes in at 6:00 and prepares dinner for the whole house. And every Tuesday a woman comes in to play the piano! They only charge $10 a night. The cost of each room is $50 a night, so they raise the other $40. All the families have kids who are receiving treatment at one of the area hospitals. Some stay a few weeks while others are here for months.
Bo will be heading back this week to be with the Overland Park Goveas. The kids have really done well with their gandparents and we are so appreciative of their help. It has been hard to have our family apart.
The Marys are stable right now and doing well. The Dr.s continue to be amazed with how well they are doing. The have quite a reputation around the hospital……those strong twins from Kansas. Ellen opened her eyes yesterday, but not long enough for us to take a picture. She is starting to move around like a real baby (that is 1lb 4oz.) Her weight has gone down since birth, but that is pretty normal. They are feeding her 2cc’s of formula every 6 hours now so we expect her to start gaining some weight.
Elizabeth gained a lot of weight during the first week because she was not peeing and was very bloated, she got up to 1 lb. 8 oz….she looked like she could pop. Thank goodness the swelling is going down,she is now around 1lb 3oz. You can count the ribs in her chest. They are trying to get her off the ventilator so she can breathe on her own. We tried a couple days ago, but she tired out so they had to put her back on. When we left last night they had found a little mask that was small enough to fit her and then kind of retro fitted it for her little nose. It is real important to get a good seal. This mask is so that she can have a little bit of air flow. One step away from breathing on her own. Once this is successful, she can start formula as well. Trust me, she needs some meat on her bones!
We appreciate the continued prayer and support for our family. Love Bo and Stacy