photo gallery- Megan’s 8th grade graduation, Ellen and her purple Barbie, Elizabeth and her pink Barbie
I would like to request a special prayer for Kinlee Mitchell. Wednesday morning another set of TTTS twins, who had been operated on by Dr. Ball, were born at 27 weeks. They were a little bigger than our girls but their ‘donor’ (like Elizabeth) was just as sick. She experienced the same kidney problems and was not urinating. This little one did not survive. She passed away Thursday night. Please remember her and her parents in your prayers. They did have one survivor, Whitney, and she is doing well. Let’s prayer for her strength too.
I am so sorry I did not post as promised last Friday. Thursday was not a very good day and Elizabeth was having some trouble. I was supposed to leave Thursday night for Megan’s graduation, but had to cancel my flight. Elizabeth was having prolems breathing and her coloring was very pale. They were worried and thought she might have some sort of infection. They decided to give her blood, take some for testing and see if things would improve. She was having many instances of Bradycardia (where she stops breathing) and this was very scary. She improved over the night, no immediate signs of infection and the blood seemed to do the trick. So with assurance from Dr. Lapine that he would take good care of her, I caught a flight early Friday morning.
Friday night, well Saturday morning, 3:30 a.m., we did get a call from the doctor. They were still having problems and decided to put Elizabeth back on the ventilator. Needless to say, we did not sleep the rest of the night and had a hard time relaxing the rest of the weekend. We tried to spend as much time with the KC kids as possible, they are really missing their mom….and their mom is really missing them!
I got back Sunday night to find Elizabeth looking much better. Her coloring was back and she was breathing better on the vent. Her blood culture came back and there were still no signs of infection. They told me that preemies ‘just do this.’ She does not get very much formula and considering how hard they have to try to breathe, sometimes they just get tired. Poor little sweetheart, she is working so hard and being so strong. She got blood again yesterday and today they put her back on the CPAP (breathing machine between ventilator and nasal cannula). She is gaining a little weight and I feel much more comfortable about her condition. I really struggled through those days, it is harder than I thought to be out here alone…..no Bo to hug when I am scared. Lucky for me I had my rosary to calm me down. I have been warned that this is just the beginning. I have been on the TTTS rollercoaster, then the bedrest rollercoaster, and now I am riding the preemie rollercoaster…….it is too bad I get so motion sick on those things! Where’s the Dramimine when you need it!
One of the nurses suggested that I get a Barbie to help measure the progress of the girls. Such a good idea. It gives a great scale to measure them against and an easy way to chart their progress. So the pictures today are the first of many to be taken. I continue to get love and support from all our friends and family, this is what gets me through. When asked ‘what can we do for you?’, I always answer the same…’Please continue your prayers, I know He is listening.’ We are not out of the woods and Elizabeth made that perfectly clear last week.
As always, thanks for your love and prayers!