photo gallery: 1.)Nicky visits his sisters 2.)Bo and Ellen 3.) Ellen looks at her daddy 4.) Ellen with mom and dad 5.) finally a kiss 6.) such little hands 7.) Elizabeth looking perky- love that bow 8.) Ellen strikes a pose 9.) can you believe they have a binky that small- Elizabeth
A little late on the post……Bo and Nicky came in town for the weekend. We are trying to bring each of the kids by themselves so that I can have some one on one time with each of them. We had a great time with Nicky!
The excitement of the weekend was that Bo finally got to hold Ellen. Of course, he had the same reaction as I did…..he cried like a baby! You can hardly help yourself. They are so fragile and to see their little faces up close (after so much waiting and worrying) is overwhelming. Ellen did open her eyes for her daddy too, just to say ‘hi.’ She is now at 2 lbs. 4 oz. …you go girl!
Bo did not get to hold Elizabeth. She had another set back this week and once again she had us really worried. She started to tire out again and they suspected infection. She was really pale and needed lots of help with her oxygen. The doctor is so thorough and careful when these instances happen. They decided to look back on all her history and see if anything stood out. Then they ran a whole bunch of tests to rule out the serious infections. They took blood, urine, and then fluid from her spine. Elizabeth is such a fighter and has so much strength. She handled all the testing so well….I was afraid it would put her over the edge. In the meantime, they started another blood transfusion. Within 12 hours she was perking up. Praise God, all her testing came back normal. The only conclusion they can come to is that she just wears down and then has no ‘reserve’ to call up. Occasionally, they will just have to increase her oxygen, ‘fill her up’ with blood and wait until she can gain more weight. She is gaining though, Elizabeth is up to 1 lb. 10 oz. I tell you what, I am having a party when BOTH my girls are at 2 pounds!
After this last incident, the doctor asked me if I had any plans to go home. This can be so exhausting and they recommended a ‘change of scenery.’ Luckily, I am going to KC the weekend for Michael’s birthday. It will be my longest trip home. I kinda agree with the doctors. I need a break and I can’t wait to see the other kids…..for longer than a day. Maybe a few relaxing trips to the pool would do me some good.
I don’t want everyone feeling too sorry for me. Most days are fairly uneventful. I spend alot of time at the hospital. This can be fun, as you know I get to change their diapers and talk to them often. I really like all the nurses and we have fun talking and hanging out. I have seen a few movies when I needed to get away and I have a friend that has had me over to her house too. I take some drives and sit outside sometimes for some fresh air. I have also finished one book and am in the middle of another. So you can see that most days are fairly calm, very different from my life in OP. I do ‘lose it’ when the girls- mostly Elizabeth- have a bad day, but thank goodness that is not very often. I continue my daily prayers with the girls, say several rosaries and just rely on His strength to get through.
I will try to get one more post in this week but will not post on Friday since I will be home. I hope to see some of you then.
With love from Utah……Stacy