photo gallery-these sweet little outfits were a gift from our cousins, the Brady’s and the Wessman’s, in Minnesota. How cute are they! (Notice the wings even on the socks) Once again, our wonderful nurses help out with a photo shoot. I will let you guess who is who. Ellen is 6 lbs 11 oz. and Elizabeth is 5 lbs 11 oz!
Hey everyone! We are still hanging tight in Utah and getting closer everyday to coming home. Just this week, the doctors and I were talking ‘exit plans’. Now that is exciting!!!
There is alot to know before bringing these preemies home. We need to find out about the neonatal follow up program available in KC. We need to make sure we order the oxygen tanks for home (both will be going home on oxygen). I need to contact a pediatric eye doctor for follow up on the eyes. I won’t bore you with the rest, but much, much more.
Next, we are trying to make plans with the airlines for the girls oxygen needs. We are finding that most airlines won’t even permit it. They basically refused to let us on. We did finally find out that Delta will accommodate us, but they need a copy of the doctors orders to permit it. We will have oxygen and monitors for the trip. This will help with the anxiety of travel, especially as we ascend and descend- wish they could figure out how to dismiss all the germs too!
We did have a little trouble today with Miss Elizabeth. She now has kidney stones. They were giving her supplements for her bones (calcium carbonate & potassium phosphate). Instead of absorbing into her bones, it stayed in her kidneys and caused the stones. They have discontinued the supplements and hope they will reabsorb. Poor little thing…..again, a strong girl that shows no outward signs of pain or discomfort. Sometimes I think she doesn’t know what ‘good’ feels like. They put an IV in her head the other day and she didn’t even cry. I can’t wait to get her home and just love on her!
Ellen is doing great! She is ready, ready, ready. Today she even went on room air (no oxygen) for three hours. When I left she was still hangin’ tough. I wouldn’t be surprised if she was back on tomorrow, but these little steps are promising. The doctors think the girls will only be on oxygen for a little while once we get home. As we move away from the 7000 ft of elevation to sea level living in Kansas, the girls will have a much easier time. So for Ellen we just need the sign off from the eye doctor and confidently expect that to happen on Wednesday. Ellen should be released next Thursday or Friday. Praise God!
With Elizabeth, we are trying to be patient. She is not quite at full feeds and still has her eye issues. If she could start taking a bottle at every feeding, we could be close with her too. I know to never lose faith with this little one. She has pulled through on more than one occasion!
Anyway, I am going to KC this weekend to get the kids ready for school. We need school supplies and uniforms. I always love getting everyone ready and don’t want to miss out. Just in case I can’t get back before the first day of classes (which has secretly been my wish since they were born), I want to make sure that the OP kids are ready. I do know that Bo is completely capable of doing this, but there is something about it that I love and I don’t want to miss out on. Summer went by so quickly and here we are staring at another school year….wow!
I knew this time would prove to be difficult in its own way. I want to be there for the kids as they start school, especially Megan who is starting HIGH SCHOOL! But don’t want the girls to lose any ground, as we are soooooo close. I am praying everyday for patience, patience and strength to get through this. I even resorted to going back through some of my faith filled letters from friends and wonderful words of encouragement. This was a life- saver this week. You have all touched me in so many ways and your words inspire me to hang in there. Thank you again for all your support, it means more than I can say.