We get the final test done for Elizabeth tomorrow….the gastric emptying test. After this test the surgeons will be able to tell us what direction we will go with Elizabeth.
It has been almost a week that the girls have both had the NG feeding tube in. They are pretty upset when Stacy puts them back in as you can imagine, but once they are in feeding is fairly easy. You just hook them up and turn on the machine.
Ellen was taking hers out a couple times a day until our neighbor (who is a nurse) told us to safety pin the end of the feeding tube to the back of her shirt so she can’t reach it. Works good, but unfortunately there is nothing you can do if the girls throw up and the tube come out their mouth.
We will meet with the surgeon in a couple weeks and let you know what they decide to do.
Thank you for your continued support!